Clinicians treating people with fatigue - help us understand and map current fatigue management approaches in Australia.
We are collaborating with Professor Avril Drummond (University of Nottingham, UK – Chief Investigator UK-wide NoTFAST study) to explore which fatigue management interventions are being delivered by clinicians in clinical practice in Australia.
The aim of this 15-20min scoping survey is to
- understand and map current fatigue management practices for stroke survivors in Australia.
- understand and document existing management practices for fatigue after stroke and other relevant conditions
We are particularly interested in the interventions offered and any disparities in provision.
Who can participate in this research?
Registered health professionals who live and work in Australia, who regularly work with people with conditions effected by fatigue.
L-R: Ms Julie Davey (Stroke Survivor), Professor Avril Drummond (OT scientist) & Professor Coralie English (Physio scientist)
Note to stroke survivors, carers and our community
- This survey for health professionals is part a multi-phase project
- We’ve put our heads together with top stroke researchers in the UK
- We will reach out to you for your opinion of and experience with fatigue treatments, and what you think is missing, in Phase 2.
- To make sure you receive a personal invitation to take part in Phase 2, you can join the Stroke Research Register (Hunter)
Click to join online https://hmri.org.au/stroke-register
Or email firstname.lastname@example.org
Or ‘phone Gillian on (02) 4042 0093
Post-stroke fatigue is common. Prevention of and effective fatigue management is a research priority for stroke survivors and clinicians who work in stroke services (Pollock et al, 2012, Norrving et al, 2018).
The most recent systematic review of fatigue after stroke reported that 50% of people with stroke experience fatigue (Hinkle et al, 2017). This is consistent with the results of The Nottingham Fatigue After Stroke –NoTFAST2 study, which showed that post-stroke fatigue is common even in those who made an otherwise good recovery, that it can occur early (Drummond et al, 2017) or up to 6 months after stroke (Hawkins et al, 2017).
It isn’t a benign symptom – it can have significant consequences. It has a negative impact on physical, social and psychological functioning, as well as satisfaction with life. (Glader et al, 2002). It is associated with poor functional outcomes (Ingles et al, 1999) and increased mortality (Glader et al, 2002) and adversely affects participation in rehabilitation (Morley et al, 2005).
The prognosis for post-stroke fatigue remains uncertain. Whilst resolution of fatigue can occur over time, a systematic review of longitudinal studies suggested that, for some, fatigue can persist even 36 months post-stroke (Duncan et al, 2012).
Despite post-stroke fatigue receiving increasing attention, and comprehensive systematic reviews of fatigue (Wu et al, 2015a; Hinkle et al, 2017), progress in fatigue management has been slow. Wu et al (2015a) concluded that there was insufficient robust evidence to inform treatment recommendations and there are no specific recommendations in UK clinical guidelines for its management (NICE, 2013) or the Australian Clinical Guidelines for the Management of Stroke (Stroke Foundation 2017). The management recommendations remain thin and poorly supported by evidence. Broadly, international expert consensus supports assessment and information provision (Royal College of Physicians, 2016, National Stroke Foundation, 2010, Stroke Foundation of New Zealand and New Zealand Guidelines Group, 2010, Eskes et al., 2015), the provision of rehabilitation during periods of lower fatigue (National Stroke Foundation, 2010, Stroke Foundation of New Zealand and New Zealand Guidelines Group, 2010), pacing of activity, exercise and sleep hygiene education (Eskes et al., 2015). It is also clear that much research has focused on single interventions (e.g exercise, rest, medication, CBT-Cognitive Behaviour Treatment) rather than a multifaceted approach.
In the absence of definitive guidance, and with an incomplete evidence base, there is little specific information about current and best post-stroke fatigue practices either in Australia or internationally.
Your participation in this survey will help to map out the current offerings for fatigue and any disparities in provision. This is an anonymous survey and we are not evaluating the effectiveness of any particular clinician’s practice.
Speak to the research team:
To find out more please contact one of the research team:
Dr Margaret Galloway - Margaret.Galloway@newcastle.edu.au
Dr Dawn Simpson Dawn.Simpson@newcastle.edu.au
Professor Coralie English Coralie.English@newcastle.edu.au
Stroke Research Register Manager
Gillian Mason email@example.com or (02) 4042 0093