Are you a carer, partner or significant other of someone with severe asthma or COPD?
Researchers are seeking volunteers to help understand the needs, views or challenges of carers, partners or significant others of people with severe asthma or COPD. They also want to identify what strategies you might use when severe asthma or COPD impacts your family.
Why is the research being done?
Carers, partners and significant others play a crucial role in the healthcare system. Given the increased recognition of their roles, it is important to include and identify their caring input as well as assess their needs to cope and sustain their caring demands. Previous research suggests that carer’s may experience physical and emotional burden impacting their psychological health, but no studies have been conducted around the role that carers, partners or significant others of people with severe asthma or COPD play.
This research aims to improve our understanding of the needs of carers, partners and significant others of people living with severe asthma or COPD. We hope to better understand and explore the coping strategies, challenges and emotional burdens of partners, carers and significant others of people living with severe asthma. We seek to compare the needs of carers, partners and significant others of people living with severe asthma to partners, carers and significant others of people living with COPD to find out if they have different caring needs.
Who can participate in the research?
- You must be over the age of 18 years.
- You must have satisfactory English language skills and be able to provide informed consent
- You must provide care or emotional support to an individual with severe asthma or COPD
- You must have at least 6 months caring experience of a person with severe asthma or COPD
- Your relative or friend must meet requirements of severe asthma or COPD (e.g. High dose ICS or frequent OCS and ACQ>1.5 or exacerbation requiring OCS in the past year)
What would you be asked to do?
There are two components to this study.
Stage 1- Online Survey
If you agree to participate in this study, you will be asked to take part in a brief online survey. Your responses to this survey will help us evaluate and identify your unmet support needs so that we can design better a person centred model of care in severe asthma. The survey is very brief and will only take about maximum 20 minutes to complete.
Stage 2- Interview
Following the completion of online survey, participants may also be invited to either participate in a face-to-face or phone interview with the researcher. In this interview, we would like to get an understanding of your views, opinions and coping strategies in your caring roles. We aim to understand what the barriers and facilitators are for you to care for an individual with severe asthma. We are especially interested in hearing your personal views to ensure all opinion and experiences are captured.
The interview will take approximately 60-120 minutes and will be audio-recorded. Face-to-face interviews will take place in a private room at the Hunter Medical Research Institute.
If you have any queries, please contact Eleanor Majellano – email Eleanor.Majellano@uon.edu.au or call (02) 4042 0650.